My renal (kidney)
Read the 'uncut version' of
my renal article published in the book "Transforming Lives" by
this was written days after I had my pre-emptive live kidney
transplant on 5th October 2005 whilst still on Ward 206 of the Royal
Infirmary of Edinburgh!
To read the proper published articles in the book "Transforming Lives", please visit the Legacy of Life website by clicking here.
More info coming soon ... (including what it was like to be treated at the Renal Unit in Raigmore Hospital before my transplant; my time with Edinburgh Royal Infirmary transplant unit during July 2005 - January 2006; and what has happened since my transplant and how I've coped with the rollercoaster ride of being on steroids, anti-rejection and immunosuppressant drugs!)
ALSO... if you are a kidney/renal/transplant patient struggling with your disease/condition and treatment, then please feel free to email me - I might not be able to help but I might be able to find a phone number for somebody who can. I know how lonely and upset you can get trying to cope with renal disease and I desperately searched the internet trying to find somebody else who was going through the same thing as me ... I was lucky in finding an American website created by a very brave strong American lady who wrote down everything that had happened to her and how she felt in the way that she had been treated and how the different medications affected her - basically anything and everything to do with renal failure and transplants - PLUS I have a small but very close family who are always there for me, a fantastic group of friends who know when I need them or when I can help them or we just have a laugh together like all friends do, and importantly, my GP/doctor who listens to me, helps me and even disagrees with the treatment the hospital says when it isn't in my best interest - in other words, he fights my corner when I'm being tossed between one consultant/hospital and another. So, if you've stumbled across my website looking for help email me or try http://www.transplantsupportnetwork.org.uk/ - they have freephone support numbers and they've "been where you are now" - 0800 027 4490 and 0800 027 4491. I just wished I had found their website and phone numbers first when I needed somebody to talk to who would actually listen to me rather than talk at me.
Remember Me by
Robert N. Test
day will come when my life will cease. When that happens, do not
attempt to instill artificial life into my body by the use of a
machine. And don't call this my deathbed. Let it be called the Bed
of Life, and let my body be taken from it to help others lead fuller